Narrowing the Options
Here’s how to ensure you’ll feel good about donating to an autism organization:
Select a group that supports the specific aspect of ASD you care about. Different groups have different missions. For example, they may only serve adults with autism, support a particular therapeutic approach, or underwrite particular types of research. Be sure the group really does what it claims to do. Ask for detailed information about programs and outcomes as well as a financial report. Ask people living with ASD if they know about the organization’s reputation and real on-the-ground work. Consider attending an event or program to determine if this is the right group for you to support. Think about whether you are interested in supporting a large national organization or a smaller local one that serves your community. Be aware there are charities that promote “fringe” and medically debunked claims, such as that vaccinations cause autism.
Some of the most well-known and well-respected organizations include:
The organization supports applied research, which it defines as “practical research that examines issues and challenges that children and adults with autism and their families face every day.” In addition, it has a strong emphasis on ensuring that adults with autism reach their potential. Some of its programs include:
College scholarships for adults with autismPrograms and resources for self-advocates"Hire autism," a portal for employers interested in hiring adults with autism
The Autism Society also provides an online database of local information and recommendations for parents and autism providers. If you need help finding the best therapists, navigating schools, locating a dentist, or even arranging a buddy group for your child, the local chapter will probably be your best resource.
NAS assists with employment placement, provides work assessments, trains members of the community, sets up mentorship programs, and runs conferences. NAS also offers in-home and in-school support and runs four autism-specific schools.
Its mission, as expressed on its website, is both respectful and supportive of people on the autism spectrum and seeks to:
See the potential in people living with autismSee and understand behavior as a form of communicationSee and respect the person as an individual firstSee the opportunity to work together to make a difference
AANE is unique in that people with ASD are involved in every aspect of the organization—from being on the board and volunteering to serving on committees and being paid staff. Also, AANE parent coaches and support specialists are “dual-certified,” with both lived experience in autism and professional expertise.
According to its website, the founders “envisioned experts from every discipline related to early brain development working together toward one goal: finding and developing treatments for individuals with neurodevelopmental disabilities.”
Over the years, it has consistently conducted high-level, peer-reviewed studies with impressive results. Because of its funding, expertise, and status, the MIND Institute has also been able to conduct very large autism studies—something that many smaller groups do not have the resources for.
In addition to autism, the MIND Institute focuses on understanding Fragile X syndrome, Down syndrome, attention-deficit/hyperactivity disorder (ADHD), 22q11.2 deletion syndrome, and other neurodevelopmental disorders.
The Autism Science Foundation, while smaller than the MIND Institute, funds some very exciting and innovative projects. Art of Autism is an organization specifically focused on spotlighting talents in the visual arts, while the Miracle Project provides opportunities for kids and adults to shine on stage. The STAR Institute conducts research, training, and programs to help improve sensory challenges for children with autism and related issues.
In addition to these, there are many well-established, high-quality nonprofits dedicated to providing a range of services and therapies. Search your area of interest (i.e., behavioral therapy, play therapy, adult support, self-advocacy) and choose a charity that meets your interests.
Join a fundraising march or similar event. These events are a great way to get to know other people who share your interest in autism and are willing to get involved. Take part in a clinical study. If you live in or near a research center (usually located in major cities or universities), you may be eligible to help with autism-related research. Studies usually involve kids or adults on the spectrum, but may also include siblings and/or parents. Volunteer as a mentor or buddy or help to run a program, team, or event that specifically includes people on the autism spectrum. Become an autism advocate in an organization such as the YMCA or Boy Scouts. These groups (and many like them) are more than willing to include kids on the spectrum but don’t always know how to do so successfully.
